The Michigan Senate has adopted a resolution introduced by Senator Ruth Johnson to designate May 2025 as Ehlers-Danlos Syndrome (EDS) Awareness Month. The resolution aims to honor individuals in Michigan who are affected by EDS, increase awareness of the condition, and promote scientific research and funding for effective solutions.
“This resolution is about honoring those in our state who are bravely battling EDS, raising awareness of this condition and hopefully encouraging more scientific research and funding to find effective solutions for patients,” said Johnson, R-Holly. “This is a condition that can significantly impact the lives of those affected.”
Ehlers-Danlos Syndrome is an inherited disorder impacting connective tissues with symptoms such as joint hypermobility, unstable joints prone to dislocation, joint pain, easily bruised skin, digestive issues, dizziness upon standing, and complications with internal organs. There are 13 types of EDS linked to genetic defects in collagen.
“Although there is currently no treatment for Ehlers-Danlos Syndrome and no known cure, early and accurate diagnosis can give patients and doctors time to create proactive medical plans and improve the patient’s quality of life,” added Johnson.
It is estimated that all types of EDS affect at least 1 in 5,000 people globally. Recent studies suggest that the syndrome may be underdiagnosed. Additionally, approximately 80% of individuals with EDS also experience postural orthostatic tachycardia syndrome (POTS), characterized by rapid heart rate increases upon standing.
Senate Resolution 48 officially declares May as Ehlers-Danlos Syndrome Awareness Month in Michigan.
Gabrielle Jones was welcomed into the Senate chamber by Senators Ruth Johnson and Jon Bumstead. Jones is part of the Teen Council of the Ehlers-Danlos Society—a nonprofit focused on education and advocacy—and was diagnosed with EDS in 2021.
